We are obsessed with avoiding death. We even avoid talking about it & thinking about it, yet it is a necessary event, a necessary component of the cycle of life as it evolved on Earth. No doubt, our aversion to the contemplation of death is linked to our evolved aversion to the event itself. But this is irrational. As any accountant will tell you, there's no benefit in avoiding the contemplation of taxes even though we are averse to paying them. In fact, that attitude is unhelpful in both situations. Not preparing for taxes means you will pay more. And not surprisingly, we spend most of our health care dollars in the last months of life, clinging, often unrealistically, painfully, and in an undignified fashion, to what little can remain of life.
Ezekiel Emanual wants to put death on our radar, where it should be. Considering death at age 75 forces us to contemplate it as the real event that actually awaits us at a finite point in time, rather than as an abstract event that happens to others and never to us.
I'm not posting Emanual's essay from The Atlantic because I think that you should be convinced to die at age 75, even though I think he makes a reasonable case. I'm posting this because I want you and your friends to talk about the issues Emanual raises. There may be no better way to rethink what it is about life that we value so much than to contemplate - I mean really, seriously contemplate - death, and the losses that precede it.
I've highlighted parts of the essay that I think are worth keeping in mind as you read it.
Got a different age than Emmanual? Got a different way of thinking about death than his? Please, share your comments below. Let's contemplate it together.
Seventy-five.
That’s how long I want to live: 75 years.
This preference drives my daughters crazy. It
drives my brothers crazy. My loving friends think I am crazy. They think that I
can’t mean what I say; that I haven’t thought clearly about this, because there
is so much in the world to see and do. To convince me of my errors, they
enumerate the myriad people I know who are over 75 and doing quite well. They
are certain that as I get closer to 75, I will push the desired age back to 80,
then 85, maybe even 90.
I am sure of my position. Doubtless, death is a
loss. It deprives us of experiences and milestones, of time spent with our
spouse and children. In short, it deprives us of all the things we value.
But here is a simple truth that many of us seem to
resist: living too long is also a loss. It renders many of us, if not disabled,
then faltering and declining, a state that may not be worse than death but is
nonetheless deprived. It robs us of our creativity and ability to contribute to
work, society, the world. It transforms how people experience us, relate to us,
and, most important, remember us. We are no longer remembered as vibrant and
engaged but as feeble, ineffectual, even pathetic.
By the time I reach 75, I will have lived a
complete life. I will have loved and been loved. My children will be grown and
in the midst of their own rich lives. I will have seen my grandchildren born
and beginning their lives. I will have pursued my life’s projects and made
whatever contributions, important or not, I am going to make. And hopefully, I
will not have too many mental and physical limitations. Dying at 75 will not be
a tragedy. Indeed, I plan to have my memorial service before I die. And I don’t
want any crying or wailing, but a warm gathering filled with fun reminiscences,
stories of my awkwardness, and celebrations of a good life. After I die, my
survivors can have their own memorial service if they want—that is not my
business.
Let me be clear about my wish. I’m neither asking
for more time than is likely nor foreshortening my life. Today I am, as far as
my physician and I know, very healthy, with no chronic illness. I just climbed
Kilimanjaro with two of my nephews. So I am not talking about bargaining with
God to live to 75 because I have a terminal illness. Nor am I talking about
waking up one morning 18 years from now and ending my life through euthanasia
or suicide. Since the 1990s, I have actively opposed legalizing euthanasia and
physician-assisted suicide. People who want to die in one of these ways tend to
suffer not from unremitting pain but from depression, hopelessness, and fear of
losing their dignity and control. The people they leave behind inevitably feel
they have somehow failed. The answer to these symptoms is not ending a life but
getting help. I have long argued that we should focus on giving all terminally
ill people a good, compassionate death—not euthanasia or assisted suicide for a
tiny minority.
I am talking about how long I want to live
and the kind and amount of health care I will consent to after 75. Americans
seem to be obsessed with exercising, doing mental puzzles, consuming various
juice and protein concoctions, sticking to strict diets, and popping vitamins
and supplements, all in a valiant effort to cheat death and prolong life as
long as possible. This has become so pervasive that it now defines a cultural
type: what I call the American immortal.
I reject this aspiration. I think this manic
desperation to endlessly extend life is misguided and potentially destructive.
For many reasons, 75 is a pretty good age to aim to stop.
What are those reasons? Let’s begin with
demography. We are growing old, and our older years are not of high quality.
Since the mid-19th century, Americans have been living longer. In 1900, the
life expectancy of an average American at birth was approximately 47 years. By
1930, it was 59.7; by 1960, 69.7; by 1990, 75.4. Today, a newborn can expect to
live about 79 years. (On average, women live longer than men. In the United
States, the gap is about five years. According to the National Vital Statistics
Report, life expectancy for American males born in 2011 is 76.3, and for
females it is 81.1.)
In the early part of the 20th century, life
expectancy increased as vaccines, antibiotics, and better medical care saved
more children from premature death and effectively treated infections. Once
cured, people who had been sick largely returned to their normal, healthy lives
without residual disabilities. Since 1960, however, increases in longevity have
been achieved mainly by extending the lives of people over 60. Rather than
saving more young people, we are stretching out old age.
The American immortal desperately wants to believe
in the “compression of morbidity.” Developed in 1980 by James F. Fries, now a
professor emeritus of medicine at Stanford, this theory postulates that as we
extend our life spans into the 80s and 90s, we will be living healthier
lives—more time before we have disabilities, and fewer disabilities overall.
The claim is that with longer life, an ever smaller proportion of our lives
will be spent in a state of decline.
Compression of morbidity is a quintessentially
American idea. It tells us exactly what we want to believe: that we will live
longer lives and then abruptly die with hardly any aches, pains, or physical
deterioration—the morbidity traditionally associated with growing old. It
promises a kind of fountain of youth until the ever-receding time of death. It
is this dream—or fantasy—that drives the American immortal and has fueled interest
and investment in regenerative medicine and replacement organs.
But as life has gotten longer, has it gotten
healthier? Is 70 the new 50?
Not quite. It is true that compared with their
counterparts 50 years ago, seniors today are less disabled and more mobile. But
over recent decades, increases in longevity seem to have been accompanied by
increases in disability—not decreases. For instance, using data from the
National Health Interview Survey, Eileen Crimmins, a researcher at the
University of Southern California, and a colleague assessed physical
functioning in adults, analyzing whether people could walk a quarter of a mile;
climb 10 stairs; stand or sit for two hours; and stand up, bend, or kneel
without using special equipment. The results show that as people age, there is
a progressive erosion of physical functioning. More important, Crimmins found
that between 1998 and 2006, the loss of functional mobility in the elderly
increased. In 1998, about 28 percent of American men 80 and older had a functional
limitation; by 2006, that figure was nearly 42 percent. And for women the
result was even worse: more than half of women 80 and older had a functional
limitation. Crimmins’s conclusion: There was an “increase in the life
expectancy with disease and a decrease in the years without disease. The same
is true for functioning loss, an increase in expected years unable to
function.”
This was confirmed by a recent worldwide assessment
of “healthy life expectancy” conducted by the Harvard School of Public Health
and the Institute for Health Metrics and Evaluation at the University of
Washington. The researchers included not just physical but also mental
disabilities such as depression and dementia. They found not a compression of
morbidity but in fact an expansion—an “increase in the absolute number of years
lost to disability as life expectancy rises.”
How can this be? My father illustrates the
situation well. About a decade ago, just shy of his 77th birthday, he began
having pain in his abdomen. Like every good doctor, he kept denying that it was
anything important. But after three weeks with no improvement, he was persuaded
to see his physician. He had in fact had a heart attack, which led to a cardiac
catheterization and ultimately a bypass. Since then, he has not been the same.
Once the prototype of a hyperactive Emanuel, suddenly his walking, his talking,
his humor got slower. Today he can swim, read the newspaper, needle his kids on
the phone, and still live with my mother in their own house. But everything
seems sluggish. Although he didn’t die from the heart attack, no one would say
he is living a vibrant life. When he discussed it with me, my father said, “I
have slowed down tremendously. That is a fact. I no longer make rounds at the
hospital or teach.” Despite this, he also said he was happy.
As Crimmins puts it, over the past 50 years, health
care hasn’t slowed the aging process so much as it has slowed the dying
process. And, as my father demonstrates, the contemporary dying process has
been elongated. Death usually results from the complications of chronic
illness—heart disease, cancer, emphysema, stroke, Alzheimer’s, diabetes.
Take the example of stroke. The good news is that
we have made major strides in reducing mortality from strokes. Between 2000 and
2010, the number of deaths from stroke declined by more than 20 percent. The
bad news is that many of the roughly 6.8 million Americans who have survived a
stroke suffer from paralysis or an inability to speak. And many of the
estimated 13 million more Americans who have survived a “silent” stroke suffer
from more-subtle brain dysfunction such as aberrations in thought processes,
mood regulation, and cognitive functioning. Worse, it is projected that over
the next 15 years there will be a 50 percent increase in the number of
Americans suffering from stroke-induced disabilities. Unfortunately, the same
phenomenon is repeated with many other diseases.
So American immortals may live longer than their
parents, but they are likely to be more incapacitated. Does that sound very
desirable? Not to me.
The situation becomes of even greater concern when
we confront the most dreadful of all possibilities: living with dementia and
other acquired mental disabilities. Right now approximately 5 million Americans
over 65 have Alzheimer’s; one in three Americans 85 and older has Alzheimer’s.
And the prospect of that changing in the next few decades is not good. Numerous
recent trials of drugs that were supposed to stall Alzheimer’s—much less
reverse or prevent it—have failed so miserably that researchers are rethinking
the whole disease paradigm that informed much of the research over the past few
decades. Instead of predicting a cure in the foreseeable future, many are
warning of a tsunami of dementia—a nearly 300 percent increase in the number of
older Americans with dementia by 2050.
Half of people 80 and older with functional
limitations. A third of people 85 and older with Alzheimer’s. That still leaves
many, many elderly people who have escaped physical and mental disability. If
we are among the lucky ones, then why stop at 75? Why not live as long as
possible?
Even if we aren’t demented, our mental functioning
deteriorates as we grow older. Age-associated declines in mental-processing
speed, working and long-term memory, and problem-solving are well established.
Conversely, distractibility increases. We cannot focus and stay with a project
as well as we could when we were young. As we move slower with age, we also
think slower.
It is not just mental slowing. We literally lose
our creativity. About a decade ago, I began working with a prominent health
economist who was about to turn 80. Our collaboration was incredibly
productive. We published numerous papers that influenced the evolving debates
around health-care reform. My colleague is brilliant and continues to be a
major contributor, and he celebrated his 90th birthday this year. But he is an
outlier—a very rare individual.
American immortals operate on the assumption that
they will be precisely such outliers. But the fact is that by 75, creativity,
originality, and productivity are pretty much gone for the vast, vast majority
of us. Einstein famously said, “A person who has not made his great
contribution to science before the age of 30 will never do so.” He was extreme
in his assessment. And wrong. Dean Keith Simonton, at the University of
California at Davis, a luminary among researchers on age and creativity,
synthesized numerous studies to demonstrate a typical age-creativity curve:
creativity rises rapidly as a career commences, peaks about 20 years into the
career, at about age 40 or 45, and then enters a slow, age-related decline.
There are some, but not huge, variations among disciplines. Currently, the
average age at which Nobel Prize–winning physicists make their discovery—not
get the prize—is 48. Theoretical chemists and physicists make their major
contribution slightly earlier than empirical researchers do. Similarly, poets
tend to peak earlier than novelists do. Simonton’s own study of classical composers
shows that the typical composer writes his first major work at age 26, peaks at
about age 40 with both his best work and maximum output, and then declines,
writing his last significant musical composition at 52. (All the composers
studied were male.)
This age-creativity relationship is a statistical
association, the product of averages; individuals vary from this trajectory.
Indeed, everyone in a creative profession thinks they will be, like my
collaborator, in the long tail of the curve. There are late bloomers. As my
friends who enumerate them do, we hold on to them for hope. It is true, people
can continue to be productive past 75—to write and publish, to draw, carve, and
sculpt, to compose. But there is no getting around the data. By definition, few
of us can be exceptions. Moreover, we need to ask how much of what “Old
Thinkers,” as Harvey C. Lehman called them in his 1953 Age and Achievement,
produce is novel rather than reiterative and repetitive of previous ideas. The
age-creativity curve—especially the decline—endures across cultures and
throughout history, suggesting some deep underlying biological determinism
probably related to brain plasticity.
We can only speculate about the biology. The
connections between neurons are subject to an intense process of natural
selection. The neural connections that are most heavily used are reinforced and
retained, while those that are rarely, if ever, used atrophy and disappear over
time. Although brain plasticity persists throughout life, we do not get totally
rewired. As we age, we forge a very extensive network of connections
established through a lifetime of experiences, thoughts, feelings, actions, and
memories. We are subject to who we have been. It is difficult, if not
impossible, to generate new, creative thoughts, because we don’t develop a new
set of neural connections that can supersede the existing network. It is much
more difficult for older people to learn new languages. All of those mental
puzzles are an effort to slow the erosion of the neural connections we have.
Once you squeeze the creativity out of the neural networks established over
your initial career, they are not likely to develop strong new brain
connections to generate innovative ideas—except maybe in those Old Thinkers
like my outlier colleague, who happen to be in the minority endowed with
superior plasticity.
Maybe mental functions—processing, memory,
problem-solving—slow at 75. Maybe creating something novel is very rare after
that age. But isn’t this a peculiar obsession? Isn’t there more to life than
being totally physically fit and continuing to add to one’s creative legacy?
One university professor told me that as he has
aged (he is 70) he has published less frequently, but he now contributes in
other ways. He mentors students, helping them translate their passions into
research projects and advising them on the balance of career and family. And
people in other fields can do the same: mentor the next generation.
Mentorship is hugely important. It lets us transmit
our collective memory and draw on the wisdom of elders. It is too often
undervalued, dismissed as a way to occupy seniors who refuse to retire and who
keep repeating the same stories. But it also illuminates a key issue with
aging: the constricting of our ambitions and expectations.
We accommodate our physical and mental limitations.
Our expectations shrink. Aware of our diminishing capacities, we choose ever
more restricted activities and projects, to ensure we can fulfill them. Indeed,
this constriction happens almost imperceptibly. Over time, and without our
conscious choice, we transform our lives. We don’t notice that we
are aspiring to and doing less and less. And so we remain content, but the
canvas is now tiny. The American immortal, once a vital figure in his or her
profession and community, is happy to cultivate avocational interests, to take
up bird watching, bicycle riding, pottery, and the like. And then, as walking
becomes harder and the pain of arthritis limits the fingers’ mobility, life
comes to center around sitting in the den reading or listening to books on tape
and doing crossword puzzles. And then …
Maybe this is too dismissive. There is more to life
than youthful passions focused on career and creating. There is posterity:
children and grandchildren and great-grandchildren.
But here, too, living as long as possible has
drawbacks we often won’t admit to ourselves. I will leave aside the very real
and oppressive financial and caregiving burdens that many, if not most, adults
in the so-called sandwich generation are now experiencing, caught between the
care of children and parents. Our living too long places real emotional weights
on our progeny.
Unless there has been terrible abuse, no child
wants his or her parents to die. It is a huge loss at any age. It creates a
tremendous, unfillable hole. But parents also cast a big shadow for most
children. Whether estranged, disengaged, or deeply loving, they set
expectations, render judgments, impose their opinions, interfere, and are
generally a looming presence for even adult children. This can be wonderful. It
can be annoying. It can be destructive. But it is inescapable as long as the
parent is alive. Examples abound in life and literature: Lear, the
quintessential Jewish mother, the Tiger Mom. And while children can never fully
escape this weight even after a parent dies, there is much less pressure to
conform to parental expectations and demands after they are gone.
Living parents also occupy the role of head of the
family. They make it hard for grown children to become the patriarch or
matriarch. When parents routinely live to 95, children must caretake into their
own retirement. That doesn’t leave them much time on their own—and it is all
old age. When parents live to 75, children have had the joys of a rich
relationship with their parents, but also have enough time for their own lives,
out of their parents’ shadows.
But there is something even more important than
parental shadowing: memories. How do we want to be remembered by our children
and grandchildren? We wish our children to remember us in our prime. Active,
vigorous, engaged, animated, astute, enthusiastic, funny, warm, loving. Not
stooped and sluggish, forgetful and repetitive, constantly asking “What did she
say?” We want to be remembered as independent, not experienced as burdens.
At age 75 we reach that unique, albeit somewhat
arbitrarily chosen, moment when we have lived a rich and complete life, and
have hopefully imparted the right memories to our children. Living the American
immortal’s dream dramatically increases the chances that we will not get our
wish—that memories of vitality will be crowded out by the agonies of decline.
Yes, with effort our children will be able to recall that great family
vacation, that funny scene at Thanksgiving, that embarrassing faux pas at a
wedding. But the most-recent years—the years with progressing disabilities and
the need to make caregiving arrangements—will inevitably become the predominant
and salient memories. The old joys have to be actively conjured up.
Of course, our children won’t admit it. They love
us and fear the loss that will be created by our death. And a loss it will be.
A huge loss. They don’t want to confront our mortality, and they certainly
don’t want to wish for our death. But even if we manage not to become burdens
to them, our shadowing them until their old age is also a loss. And leaving
them—and our grandchildren—with memories framed not by our vivacity but by our
frailty is the ultimate tragedy.
Seventy-five. That is all I want to live. But if I
am not going to engage in euthanasia or suicide, and I won’t, is this all just
idle chatter? Don’t I lack the courage of my convictions?
No. My view does have important practical
implications. One is personal and two involve policy.
Once I have lived to 75, my approach to my health
care will completely change. I won’t actively end my life. But I won’t try to
prolong it, either. Today, when the doctor recommends a test or treatment,
especially one that will extend our lives, it becomes incumbent upon us to give
a good reason why we don’t want it. The momentum of medicine and family means
we will almost invariably get it.
My attitude flips this default on its head. I take
guidance from what Sir William Osler wrote in his classic turn-of-the-century
medical textbook, The Principles and Practice of Medicine: “Pneumonia
may well be called the friend of the aged. Taken off by it in an acute, short,
not often painful illness, the old man escapes those ‘cold gradations of decay’
so distressing to himself and to his friends.”
My Osler-inspired philosophy is this: At 75 and
beyond, I will need a good reason to even visit the doctor and take any medical
test or treatment, no matter how routine and painless. And that good reason is
not “It will prolong your life.” I will stop getting any regular preventive
tests, screenings, or interventions. I will accept only palliative—not
curative—treatments if I am suffering pain or other disability.
This means colonoscopies and other cancer-screening
tests are out—and before 75. If I were diagnosed with cancer now, at 57, I
would probably be treated, unless the prognosis was very poor. But 65 will be
my last colonoscopy. No screening for prostate cancer at any age. (When a
urologist gave me a PSA test even after I said I wasn’t interested and called
me with the results, I hung up before he could tell me. He ordered the test for
himself, I told him, not for me.) After 75, if I develop cancer, I will refuse
treatment. Similarly, no cardiac stress test. No pacemaker and certainly no
implantable defibrillator. No heart-valve replacement or bypass surgery. If I
develop emphysema or some similar disease that involves frequent exacerbations
that would, normally, land me in the hospital, I will accept treatment to
ameliorate the discomfort caused by the feeling of suffocation, but will refuse
to be hauled of
What about simple stuff? Flu shots are out.
Certainly if there were to be a flu pandemic, a younger person who has yet to
live a complete life ought to get the vaccine or any antiviral drugs. A big
challenge is antibiotics for pneumonia or skin and urinary infections.
Antibiotics are cheap and largely effective in curing infections. It is really
hard for us to say no. Indeed, even people who are sure they don’t want life-extending
treatments find it hard to refuse antibiotics. But, as Osler reminds us, unlike
the decays associated with chronic conditions, death from these infections is
quick and relatively painless. So, no to antibiotics.
Obviously, a do-not-resuscitate order and a
complete advance directive indicating no ventilators, dialysis, surgery,
antibiotics, or any other medication—nothing except palliative care even if I
am conscious but not mentally competent—have been written and recorded. In
short, no life-sustaining interventions. I will die when whatever comes first
takes me.
As for the two policy implications, one relates to
using life expectancy as a measure of the quality of health care. Japan has the
third-highest life expectancy, at 84.4 years (behind Monaco and Macau), while
the United States is a disappointing No. 42, at 79.5 years. But we should not
care about catching up with—or measure ourselves against—Japan. Once a country
has a life expectancy past 75 for both men and women, this measure should be ignored.
(The one exception is increasing the life expectancy of some subgroups, such as
black males, who have a life expectancy of just 72.1 years. That is dreadful,
and should be a major focus of attention.) Instead, we should look much more
carefully at children’s health measures, where the U.S. lags, and shamefully:
in preterm deliveries before 37 weeks (currently one in eight U.S. births),
which are correlated with poor outcomes in vision, with cerebral palsy, and
with various problems related to brain development; in infant mortality (the
U.S. is at 6.17 infant deaths per 1,000 live births, while Japan is at 2.13 and
Norway is at 2.48); and in adolescent mortality (where the U.S. has an
appalling record—at the bottom among high-income countries).
A second policy implication relates to biomedical
research. We need more research on Alzheimer’s, the growing disabilities of old
age, and chronic conditions—not on prolonging the dying process.
Many people, especially those sympathetic to the
American immortal, will recoil and reject my view. They will think of every
exception, as if these prove that the central theory is wrong. Like my friends,
they will think me crazy, posturing—or worse. They might condemn me as being
against the elderly.
Again, let me be clear: I am not saying that those
who want to live as long as possible are unethical or wrong. I am certainly not
scorning or dismissing people who want to live on despite their physical and
mental limitations. I’m not even trying to convince anyone I’m right. Indeed, I
often advise people in this age group on how to get the best medical care
available in the United States for their ailments. That is their choice, and I
want to support them.
And I am not advocating 75 as the official
statistic of a complete, good life in order to save resources, ration health
care, or address public-policy issues arising from the increases in life
expectancy. What I am trying to do is delineate my views for a good life and
make my friends and others think about how they want to live as they grow
older. I want them to think of an alternative to succumbing to that slow
constriction of activities and aspirations imperceptibly imposed by aging. Are
we to embrace the “American immortal” or my “75 and no more” view?
I think the rejection of my view is literally
natural. After all, evolution has inculcated in us a drive to live as long as
possible. We are programmed to struggle to survive. Consequently, most people
feel there is something vaguely wrong with saying 75 and no more. We are
eternally optimistic Americans who chafe at limits, especially limits imposed
on our own lives. We are sure we are exceptional.
I also think my view conjures up spiritual and
existential reasons for people to scorn and reject it. Many of us have suppressed,
actively or passively, thinking about God, heaven and hell, and whether we
return to the worms. We are agnostics or atheists, or just don’t think about
whether there is a God and why she should care at all about mere mortals. We
also avoid constantly thinking about the purpose of our lives and the mark we
will leave. Is making money, chasing the dream, all worth it? Indeed, most of
us have found a way to live our lives comfortably without acknowledging, much
less answering, these big questions on a regular basis. We have gotten into a
productive routine that helps us ignore them. And I don’t purport to have the
answers.
But 75 defines a clear point in time: for me, 2032.
It removes the fuzziness of trying to live as long as possible. Its specificity
forces us to think about the end of our lives and engage with the deepest
existential questions and ponder what we want to leave our children and
grandchildren, our community, our fellow Americans, the world. The deadline
also forces each of us to ask whether our consumption is worth our
contribution. As most of us learned in college during late-night bull sessions,
these questions foster deep anxiety and discomfort. The specificity of 75 means
we can no longer just continue to ignore them and maintain our easy, socially
acceptable agnosticism. For me, 18 more years with which to wade through these
questions is preferable to years of trying to hang on to every additional day
and forget the psychic pain they bring up, while enduring the physical pain of
an elongated dying process.
An interview with Emanual by the CBC:
ReplyDeletehttp://www.cbc.ca/news/health/renowned-doctor-ezekiel-emanuel-says-75-is-good-age-to-die-1.2862410?cmp=fbtl&utm_content=buffer651d6&utm_medium=social&utm_source=facebook.com&utm_campaign=buffer
Updated URL for the interview with Emanuel by Michael Enright:
ReplyDeletehttps://www.cbc.ca/radio/thesundayedition/dr-ezekiel-emanuel-says-he-wants-to-die-at-75-and-we-should-all-do-the-same-1.2860807